What it does
Hht foundation international, inc. Is a not-for-profit organization dedicated to serving individuals affected by hereditary hemorrhagic telangiectasia (hht). The organization provides information to patients, family members, and healthcare professionals; offers support and community for patients and their families; raises funds to advance basic and clinical research; and sponsors research grants to promote scientific studies focused on hht.
Research - the research program supports funding for studies that advance understanding of the underlying mechanisms of hht, fosters the development of novel therapeutic approaches for treatment and disease management, and promotes translational research that leads to multi-center clinical trials. In addition, the hht international scientific conference is held biennially to facilitate collaboration and the exchange of scientific knowledge among researchers and clinicians.
Education - the goal of the education program is to advance awareness, accurate diagnosis, and best-practice treatment of hht by supporting patient education and outreach, sponsoring educational conferences and professional meetings, and strengthening a network of comprehensive hht clinical centers of excellence.
Public information - the goal of the public information program is to increase awareness of hereditary hemorrhagic telangiectasia (hht) among the general public, private sector, and governmental audiences through strategic engagement with the press and other media channels.